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DNA & Law

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by Ilaria Anna Colussi


“We have discovered the secret of life”: these were the words chosen, in the ancient 1953, by two scientists, Watson e Crick, referring to the double-helix molecule named DNA, in order to announce to the world an epochal scientific discovery.
In the last decades, there have been numerous – and they are always more – implications of DNA beyond the boundaries of the proper theoretical scientific knowledge.
The use of this molecule can be seen:
- in the field of discoveries about the existence of genetic diseases before their organic show, such as in the case of genetic therapies, genetic tests (predictive and pre-symptomatic),  genetic counselling (prenatal genetic diagnosis and preimplantation diagnosis);
- in the matter of insurances and labour field, as in the recourse of genetic data with the purpose to prevent the stipulation of insurances o the recruitment of workers that could be carriers of genetic diseases;
- in reference to biotechnologies and to patent and intellectual property consequences of DNA;
- as regards populations and familiar groups, in the use for biomedical purposes and for historical reconstruction of genealogical evolution;
- in the field of family law for the ascertainment of parental relationships;
- in order to make personal identification of people or in the research about missed and disappeared people after conflicts or mass-disasters;
- in the subject of trial law as scientific evidence, both in lawsuit (paternity tests) and in criminal trail (for the identification of  guilty person on the basis of his/her genetic profile, extracted by his/her biological sample found in the crime scene);
- in the field of the so-called “biobanks”, distinguished as banks used for therapeutic purposes and for research, population biobanks and banks for criminal investigative aims.
The peculiarity of identification that DNA owns by its nature could make it, furtherly, a meaningful means of  identification for the population as a whole (the future registry office) and maybe it is not far away from now the moment when every citizen will be gifted with a magnetic card, having a microchip where the personal genetic code will be stored (with the effect of banning the traditional identity cards).
So, DNA is and will be always more a “handy entity”, being commonly used.
If this is true, it is plain that human genetics summons rights and law under a plurality of points of view.
This section aims to be an observatory and a collection of legislative, judicial and literature materials that have dealt and deal with the problems caused by DNA within the legal field in its different contact points, having a specific attention towards the actual and future tendencies of its use.
Anyone who would be interesting in collaborating on this initiative by sending comments or materials, please write an e-mail to the following address: ilariaanna.colussi@unitn.it, specifying the object as “DNA AND LAW”.   


 

Publications:
2002, I giudici davanti alla genetica, by Amedeo Santosuosso, Carlo Alberto Redi, Silvia Garagna e Maurizio Zuccotti (edited), Ibis, Pavia


ECLT resources


November 2011, AbMedica, Genomic research and the right to information, an interview to Amedeo Santosuosso (in Italian)

July 2011, The National DNA database in England and Wales: the never ending saga, by Ilaria Anna Colussi

April 2011, From S. and Marper to Greens: Is the UK going to withdraw from the European Convention of Human Rights?, by Ilaria Anna Colussi

2011, Towards a genetic registry office?, by Ilaria Anna Colussi, in Biotech innovations and Fundamental Rights, Roberto Bin, Sara Lorenzon, Nicola Lucchi (edited), Springer Verlag, Milano


2011, Dai vichinghi agli oroscopi genetici: saghe islandesi passate e future, by Ilaria Anna Colussi, in La disciplina delle biobanche a fini terapeutici e di ricerca, Atti del Forum Biodiritto 2010, Cedam, Padova


2011, Dati genetici e forze di polizia: intersezioni europee, by Ilaria Anna Colussi, in La protezione dei diritti fondamentali: Carta dei diritti UE e standards internazionali, Atti del XV Convegno SIDI, Bologna 10-11 giugno 2010, Lucia Serena Rossi (edited), Editoriale Scientifica, Napoli

2011, Genetica forense e codice della privacy: riflessioni su vecchie e nuove banche dati, in Resp. civ. e prev., 2011, 05, 1184, by Giuseppe Gennari


July 2010, La Corte europea dei diritti dell’uomo e le banche del DNA a scopo investigativo penale: il caso UK, by Ilaria Anna Colussi


2010, Diritto e genetica delle popolazioni, by Amedeo Santosuosso, Ilaria Anna Colussi, in Trattato di Biodiritto, vol. II; Governo del Corpo, Stefano Rodotà, Paolo Zatti (edited), Giuffré, Milano


May 2009, Scienzainrete - Genetics and society, the Icelandic Case, an interview to Amedeo Santosuosso (in italian)


2009, Privacy, genetica e zanzare indiscrete, in Resp. civ. e prev. 2009, 03, 502, by Giuseppe Gennari


2009, La conservazione di campioni biologici e di profili del dna nella legge italiana, alla luce del dibattito europeo, in Cass. Pen. 2009, n. 11 e in I dati genetici nel biodiritto, atti del Forum Biodiritto 2009, by Federica Casasole


2009, Bioinformazione e indagini penali: la l. n. 85 del 30 giugno 2009, in Resp. civ. e prev. 2009, 12, 2630, by Giuseppe Gennari


2002, The right to genetic disobedience: the Iceland case, Amedeo Santosuosso



Other resources

08.08.2011, NASA Researchers: DNA Building Blocks Can Be Made in Space, Bill Steigerwald

2009, Privacy e nuove forme di discriminazione rispetto alla circolazione delle informazioni    genetiche: sistemi giuridici di tutela a confronto, by Paola Torretta


2009, Analisi genetica e tutela del diritto alla riservatezza. Il bilanciamento tra il diritto di conoscere e quello di ignorare le proprie informazioni biologiche, by Lorenzo Chieffi


2010, Umano post umano. I rischi di un uso ideologico della genetica, in Diritto e Questioni Pubbliche, n. 8/2008, by Paolo Sommaggio


2008, La disciplina giuridica delle biobanche, in Pathologica 2008;100:86-101, by Matteo Macilotti, Umberto Izzo, Giovanni  Pascuzzi, Mattia Barbareschi


2008, L'indagine di paternità: inquadramento normativo, premesse scientifiche e riflessioni etico-deontologiche nel caso di richiesta avanzata da privati, by Luciana Caenazzo, Alessia Comacchio, Paolo Benciolini


 
 
 
 
 
 
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