Ilaria Anna Colussi
Ilaria Anna Colussi (born in Udine, 1st March 1985), after attending classical studies, graduated in a 3-year Bachelor program in International and European Law at the University in Udine (I), Faculty of Law, in July 2007, presenting the final thesis about the “Third Pillar and the police cooperation within European Union” (magna cum laude).
In October 2007 she passed the open competitive examination to enter the “Ghislieri” Hall of Residence, situated in Pavia (I) and reserved for university students studying in Pavia, which is recognized as a highly qualified cultural institute.
During summer time in 2008, she attended a period at the University of Cambridge (St. John’s College) and she also participated, as Visiting Student, at the activities promoted within the Human Tissue Authority located in London.
In July 2009 she graduated in Law with a J.D. magna cum laude from the University of Pavia, Faculty of Law, discussing a final thesis about “Individual Liberties, public needs and technological applications after the judgement S. and Marper v. UK (ECHR, 4th December 2008)”, under the supervision by Professor Santosuosso.
After graduation she has been, for some months, Scholarship Fellow at the Fondazione I.R.C.C.S. Policlinico S. Matteo di Pavia, in cooperation with the Interdepartmental Research Centre for Life Sciences, Health and the Courts (ECLSC), University of Pavia: her research focused on the theme of “Critical decisions in Medicine”.
Since November 2009, she has been a Ph. D. student in Public Law at the Doctoral School of Comparative and European Legal Studies, University of Trento (I). During the doctoral period, she has been a visiting researcher at the Oxford University (Uehiro Centre for Practical Ethics) and at the University of Deusto in Bilbao (Cátedra Interuniversitaria de Derecho y Genoma Humano).
In April 2013 she has been awarded with the title of “Doctor in Public Comparative and European Legal Studies” with the added label of “Doctor Europaeus”, after writing and discussing a thesis about synthetic biology, the governance of its risks and the protection of fundamental rights. The thesis entitled “Synthetic biology, concerns and risks: looking for a (constitutionally oriented) regulatory framework and a system of governance for a new emerging technology” has been positively evaluated by two professors coming from non Italian academic institutions (prof. Carlos María Romeo Casabona from the Cátedra Interuniversitaria de Derecho y Genoma Humano and prof. Aurora Plomer from University of Sheffield).
From 2009 to 2011 she has been an apprentice lawyer in a private law firm in Udine and at the “Avvocatura distrettuale dello Stato” in Trento. She has been admitted to the bar as a recognised lawyer (avvocato) after passing the written and oral examination in the session 2011.
Her research interests deal with synthetic biology, new technologies, biosecurity risks, bioterrorism and dual use dilemma. Moreover, she is interested in the relationship between genetics and the law, biobanks, forensic DNA banks and fundamental rights.
PUBLICATIONS:
- A. Santosuosso, I. A. Colussi, Diritto e genetica delle popolazioni (transl: Population Genetics and the Law), in S. Rodotà, P. Zatti (eds.), Trattato di Biodiritto: il Governo del Corpo (transl: Treaty of Biolaw: the Governance of the Body), vol. II, Giuffré, Milan, 2010, p. 351-370;
- I. A. Colussi, Towards a genetic registry office?, in R. Bin, S. Lorenzon, N. Lucchi (eds.), Biotech innovations and Fundamental Rights, Springer Verlag, Milan-Germany, 2011, p. 275-285;
- I. A. Colussi, Dati genetici e forze di polizia: intersezioni europee (transl: Genetic data and police forces: European intersections), in L.S. Rossi (eds.), La protezione dei diritti fondamentali: Carta di Nizza e standards internazionali (transl: The protection of fundamental rights: the European Charter of Nice and international standards), Editoriale Scientifica, Naples, 2011, p. 279-310;
- A. Santosuosso, I. A. Colussi, La banca dati del DNA: alimentazione – trattamento e accesso – presupposti cancellazione – tempi di conservazione (artt. 5-15 l. n. 85/09), (transl: DNA data bank: sources - treatment and access – conditions for deleting – retention time, articles 5-15, Law n. 85/09), in Politica del diritto, vol. XLII, n. 3, Il Mulino, Bologna, Settembre 2011, p. 437-466;
- I. A. Colussi, Dai Vichinghi agli oroscopi genetici: saghe islandesi passate e future (transl: From the Vikings to genetic horoscopes: Icelandic sagas in past and future), in C. Piciocchi, P. Veronesi, C. Casonato (eds.), Le biobanche a fini terapeutici e di ricerca (transl: Research and therapeutic aimed biobanks), vol. 101, Cedam, Padua, 2012, p. 249-272;
- I. A. Colussi, Quando a Strasburgo si decide di fine vita. Casi e decisioni della Corte europea dei diritti dell’Uomo in tema di eutanasia e suicidio assistito (transl: When in Strasbourg the discussion is about the end of life... Cases and decisions by the European court of Human Rights in the field of euthanasia and assisted suicide) in A. D’Aloia (eds.), Il diritto e la fine della vita. Decisioni, principi, casi (transl: The Law at the end of life. Principles, decisions, cases), Giappichelli, Turin, 2012, p. 445-460;
- C. Casonato (update by I. A. Colussi), Capitolo VI, caso n. 24: Privacy e AIDS. Il punto di vista giuridico (transl: Chapter VI; case n. 24: Privacy and AIDS. The legal viewpoint), in P. Funghi, F. Giunta, C. Paonessa (eds.), Medicina, bioetica e diritto: i problemi e la loro dimensione normativa (transl: Medicine, bioethics and the law: the problems and their normative dimension), ETS, Pisa, II edition, 2012, p. 454-463;
- C. Piciocchi (update by I. A.Colussi), Capitolo I, caso n. 4: Test Genetici Per Malattia Ad Insorgenza Tardiva. Il punto di vista giuridico, (transl: Chapter I; case n.4: Genetic Tests for a late-onset disease), in P. Funghi, F. Giunta, C. Paonessa (eds.), Medicina, bioetica e diritto: i problemi e la loro dimensione normativa (transl: Medicine, bioethics and the law: the problems and their normative dimension), ETS, Pisa, II edition, 2012, p. 91- 98;
- I. A. Colussi, Forensic DNA Banks: European «Intersections», in Revista “Derecho”, Facultad de Ciencias Jurídicas y Políticas de la Universidad Católica de Santa María de Arequipa, Peru, n. 6, November 2012, p. 53-74;
- E. Atienza Macías, I. A. Colussi, Dopaje genético en el ámbito deportivo: nueva realidad, nuevo desafío para la Bioética (transl: Genetic doping in the sport field: a new reality, a new challenge to Bioethics), Actosde las comunicaciones y ponencias del VIII Congreso Mundial de Bioética, SIBI, 2013, p. 115-118;
- I. A. Colussi, Philanthropy and Research Biobanks: The Model of Biotrust, in L.T. Ealy (eds.), Conversations on Philanthropy: Emerging Questions on Liberality and Social Thought. Journal by the Project for New Philanthropy Studies@DonorsTrust, vol. IX, Indianapolis (in print);
- I. A. Colussi, Playing with nanomolecules and with biobricks: the role of responsible stewardship in nanotechnology and synthetic biology, in S. Arnaldi, A. Ferrari, F. Marin, P. Magaudda (eds.), Dilemmas of choice. Responsibility in nanotechnology development, Springer, Dordrecht (in print);
- I. A. Colussi, Synthetic Biology Between Challenges And Risks: Suggestions For A Model Of Governance and a Regulatory Framework, based on Fundamental Rights, in Revista de Derecho y Genoma Humano, num. 38, Enero-Junio 2013 (in print).
CONGRESSES, CONVENTIONS AND WORKSHOPS:
- 19th June 2013: Pavia (I), meeting “2013 Law & Science. Young scholars informal symposium”, organized by the European Centre for Law, Science and New Technologies (ECLT) of the University of Pavia and College Ghislieri. Paper written with Ms. Elena Atienza Macías (University of Deusto): “In search of a New Approach to Emerging Technologies: the Prudent Vigilance Model” (awarded with second prize);
- 21st – 22nd May 2013: Bilbao (Spain), XX Jornadas sobre Derecho y Genoma Humano, organized by the Interuniversity Chair of Human Genome and the Law, University of Deusto and University of the Basque Country. I was chosen after a call for papers. Paper: “Synthetic biology and the freedom of scientific research: a fundamental freedom in front of a new emerging technology”;
- 14th – 16th May 2013: Gijón (Spain), VIII World Conference on Bioethics about "Universal Bioethics”, organized by the International Society on Bioethics. Paper written with Ms. Elena Atienza Macías (University of Deusto). Paper: “Dopaje genético en el ámbito deportivo: nueva realidad, nuevo desafío para la Bioética”;
- 27th April 2012: Nottingham (U.K.), conference “Dignity in Donation”, organized by Nottingham Trent University. I was chosen after a call for papers. Paper: “Biotrust and human dignity: a model for donations”;
- 17th - 20th November 2011: Indianapolis (U.S.A.), 11th Colloquium on New Philanthropy Studies, “Conversations on Philanthropy: Emerging Questions on Liberality and Social Thought. The Law of Charity: History, Theory and Social Practice”. I was chosen after a call for papers. Paper: “Philanthropy and biobanks: the model of biotrust”;
- 6th – 7th June 2011: Rovigo (I), International Workshop “Dilemmas of choice: responsibility in nanotechnology development”, organized by CIGA-Interdepartmental Centre of Research and Services for the environmental legal decisions and the ethical certification of enterprises, University of Padua. I was chosen after a call for papers. Paper “Playing lego with nanomolecules and with biobricks: the role of responsible stewardship in nanotechnology and synthetic biology”;
- 19th – 21st May 2011: Napoli (I), Conference FIRB “The law and the end of life. Decisions, Principles, Cases”, organized by University of Ferrara, Trento, Napoli. I was chosen after a call for papers. Paper: “When the end of life is at stake in Strasbourg. The case-law of the European Court of Human Rights with regards to euthanasia and assisted suicide”;
- 29th - 30th April 2011: Dublin (IRL), Irish Society of Comparative Law Third Annual Conference, organized by University College of Dublin. I was chosen after a call for papers. Paper: “When a silent witness helps criminal investigations: forensic DNA databases in Ireland, the United Kingdom, Italy and the Netherlands through virtuous and vitiated examples”;
- 11th March 2011: Trento (I), Seminars on European Comparative Constitutional Law, “Furthering European Constitutionalism and Balancing the Interactions of Judicial Integration”, organized by University of Trento. Paper: “Playing with biological bricks: reflections on the relationship between synthetic biology and human dignity”;
- 20th - 21st January 2011: Ferrara (I), conference FIRB “Biotechnological innovations and fundamental rights”, organized by University of Ferrara, Trento, Napoli. I was chosen after a call for papers. Paper: “Towards a genetic registry office?”;
- 19th November 2010: Milano (I), conference “The Fundamental Rights after the Nice Charter and Lisbon Treaty”, organized by the European Centre for Law, Science and New Technologies (ECLT) of the University of Pavia. I was chosen after a call for papers. Paper: “Eugenics and fundamental human rights”;
- 12th July 2010: Pavia (I), meeting “2010 Law & Science. Young scholars informal symposium”, organized by the European Centre for Law, Science and New Technologies (ECLT) of the University of Pavia and College Ghislieri. Paper: “The European Court of Human Rights and forensic DNA databanks: the case of U.K.”;
- 10th - 11th June 2010: Bologna (I), XV Conference of SIDI- Italian Society of International Law, “The Protection of Fundamental Rights: the Nice Charter and International standards. Systems of protection in the E.U. and E.C.H.R.: concurrence or convergence?”. I was chosen after a call for papers. Paper: “Genetic data and police bodies: European intersections”;
- 3rd - 4th June 2010: Ferrara (I), Forum Biodiritto 2010 “Biobanks for therapeutic and research purposes”, organized by University of Ferrara and Trento. I was chosen after a call for papers. Paper: “From the Vikings to Genetic Horoscopes: Icelandic Sagas in the past and the future”.
LANGUAGE SKILLS:
- Italian: mother tongue
- Friulian: mother tongue
- English: fluent
- Spanish: fair
- German: basic knowledge